Just another day......

Well this morning I got up with the kids and I was fixing breakfast and typically when I do this I let the kids play in the living room.....well they were playing and then I hear Rylan say "No Victoria don't touch that" so I yell what is she getting into....he yells back "she is touching my pee" I was like ewwwww don't let her do that it's gross.....but it's just one of those things kids do.....

Sorry I haven't updated in a couple of days....Things have been busy here.....Victoria had her therapy appointments and she qualifies for occupational, physical, and speech therapy......in fact they feel that she shouldve been having speech sooner then she has been.

Today we went to the ENT (ear nose and throat) doctor and he said he would not reccomend her having the ear tube surgery because her ears have cleared up and are looking amazing, but that if she starts getting nurmerous ear infections again that we will do it....now with her hearing loss that we found back when we lived in CT, and now that she is making more sounds but nothing that we can really understand, or that makes sense, and you have to increase your volume when you talk to her, unless you are next to her ear or close to it.......we may have to get hearing aids....we don't know yet...we have to get another hearing test done, and go from there

Well that is really all thats going on, hope to talk to you all soon
Much love
AManda, Rylan, and Victoria

Update.....

Well this week has been busy....We were supposed to have Victoria's therapy appt. on Monday and Tuesday but we had to cancel them because Rylan was up all night Sunday vomitting....It was not a fun night at all.....But if I can be a proud Momma, he made it to the toilet everytime, so I had NO vomitt to clean up off the floor!!!! He was feeling better Monday afternoon but I didn't want to take a chance with Tuesday, because one of Victoria's therapist is due to have a baby any day and if he had the flu that could've been bad....so We did the therapy today....and findings are......Victoria needs speach therapy, occupational therapy and physical therapy....she will have these for a couple of months and then we will re-evaluate. Hopefully the speach and occupational will help her oral motor skills and we will go from there.

We went looking at homes yesterday and I found one that I really really like so we are talking to the company to see if we can get some financing for it....I will update more on that when we know more....say a prayer for us because the quicker we get this house the quicker Anthony can get down here and be with his family again!!!!

Well that's all to update for now....lots of love to all

Amanda, Rylan, and Victoria!!!

webcam/skype acct

Well i went out and got a web cam today, and set up a free skype account.....we chatted with our friends Rick, Lauren and baby Logan, the kiddos loved it! It was the coolest thing ever!.....

Our Skype Id is: Mandiandtflex

the craziest things happen in this house......

We generally have a bunch of jokesters that live in this house.....that being said....My step mom (aka Momma) has been sick in bed with the Flu since Friday, so we have been joking her and she has been yelling to us that she is lonley....and we just tend to laugh at her and go on with what we are doing.....well tonight I made yummy brownies and we were making sundaes out of them....well Daddy made one for Momma....and asked if I had gotten mine yet....I responded " Nope I just slaved over the hot stove making them but you all get to eat them" so he in turn went into the kitchen laughing his butt off and made me one.....well when he brought it to me I was like what not choco sauce....reject....so he took it back to the kitchen put choco sauce on it and brought it back....Well about 5 mins into eating my ice cream I noticed something white on my ice cream....I freak out and call my father back in the room at this point he is laughing and laughing.....I was like what did you put in my ice cream....his response, that's what you get for sending it back.....and he went on laughing.....btw it was Mayo!!!!!!!!!!!!!!!!!

Everything here has been good...We were going to go to the fair this weekend, but its suppose to rain tomorrow so Rylan and I are going to the movies in a couple of weeks together.......other then that Monday we got for a Physical Therapy evaluation, and Tuesday we have Speech and Occupational therapy evaluation....I will update after those appointments, other then that about 2 or so months before we come home to spend the holidays as a family....much love to all of you
Amanda, Rylan and Victoria

Pictures....sorry!

Looking for the cows! Doing his favorite thing....playing in a mudd puddle

Sitting on the hill watching the cows......he loves doing that at night

Miss Priss being her happy happy self!

This one is from over the summer @ the beach but I love it so thought I would share it! The rest have been taken since we have moved! Enjoy!!!

Thursday Update......

Well we have had a pretty uneventful week this week......The kids and I pretty much hung out at home all week, and have really enjoyed doing so! We went to town on Tuesday so that I could drop off an application to Gymboree and return a pair of shoes (as my feet are retaining water and staying a little on the swollen side don't know why). I got a call today from the physical therapist and Victoria goes in to see them on Monday. Today I took Rylan out to see my Dad and my grandfather in the field up the street as they are bailing hay......he loved it!!! He would've sat there all day and watch them bail hay if I let him! Well thats it for now when I have more to report I will write again....here are a few picture I thought you would enjoy!

Much love
Amanda, Rylan, and Princess Victoria

Nothing going on.....

Well I really don't have anything to update today....The kiddos are both doing amazing....Victoria is sitting in her chair screaming as we speak as she gets fed, nothing unsual there....and Rylan is doing good....We are taking Rylan to the big Fair down here this Sunday so he should have a blast with that....he has been a really good boy lately so we (my dad, Momma, and I) figured he should be rewarded! I have applied for 2 more jobs, Sears and Jc Penny so we will see..... Well thats its for now!

Sorry it's been a couple of days......

Hello Everyone.....Sorry I haven't updated over the past few days, it's been a little crazy down here!!!! These past few days have been the most trying and tiring since I have gotten down here. The kids have been a little off the wall, Rylan misbehaving a little bit (and I'm sure the non stop rain doesn't help....) and Victoria just crying like crazy when she is hooked up to her pump, which is nothing new, but when you are hit with both at once it sends you wanting to run for the hills.

Wednesday we went to WIC and got the kids back on WIC. They will be providing some of Victoria's formula now. As for Rylan they provide all of his milk, cheese, juice ect for the month! It's going to be a HUGE expense that we don't have to worry about anymore. I also applied for Social Security Benefits for Victoria (basically the disability kind), so we are waiting on hearing if we can get it or not.

On Friday Victoria was evaluated by a therapist and is going to be requiring more services then we got up in Connecticut. She will be getting Occupational therapy, Physical therapy, Speech therapy, and what they call Self Help therapy. Hopefully these things will get her to where she needs to be!

Today I took Rylan (Along with Aunt Trisha) and we went to the mall for a special day. He LOVED having special time with Mommy. I think that I am going to try to start doing this more often, as I truly believe that he needs more one on one time with me right now.

Well the kids stats as of Wednesday are
Rylan ---- Height- 38 inches and Weight- 32 lbs

Victoria---Height 28 1/4 inches and Weight 17.8 lbs

Dear Lord give me the strength.....

Well these past 3 days have been trying to say the least....Rylan has figured out how to push my buttons in every way possible.....Yesterday he flooded the bathroom, so I had that mess to clean up.....and today started with (at 8:30 this morning) "Mommy, Can I have an Oreo"....It is now 10:30 and I am still listening to it....I am ready to pull my hair out. I know it is because he has been trapped inside for like a week now because it has rained non stop....hopefully today I can get him out for a little bit.

Victoria is doing well....she has been eating but even that is starting to slow down.....She is going to be my special child and things are just going to be more difficult for her so we just take it one step at a time....I got covered in Mango and something else the other night I don't remember what.....so we are just taking it slow again.....

Well that's all to update for now I am going to the social security office later today to apply for ssi (income/insurance) for Victoria.....Hopefully I will get it.....Cause every little bit helps at this point

What a bad night......

Well last night just kept going from bad to worse to even worse......Victoria was very very cranky all day yesterday so finally at like 5 I gave her her dinner. She ate it all, well I was cooking green beans so I put some in the safe feeder and gave them to her, she loved it and sat and ate them for like 20 min or so. Well then we all sit down at the table to have dinner (please keep in mind she is sitting in one of those booster seats that attaches to the chair) and we are eating and all of the sudden my dad (who doesn't curse) goes "Oh Shit" and I look and my baby and the chair are flying backwards. She kicked off the table and the chair flipped back with me sitting right next to her.....I wanted to cry for her....She is however OK, I swear it was like 3 min of crying and she was ready to go play.....Now Rylan on the other hand I swear 5pm hit and it was like OK lets see how many times I can annoy mommy. I would tell him to stop doing something and he just continued to do it. When Victoria got hurt he kept hitting me trying to get my attention. So I put him in his room....I needed 5 min by myself, I should've put me in his room....lol....well ultimately he cried and cried for like 20 min and then got over it....then when it was time to go to bed he wouldn't go to sleep, he didn't fall asleep till like 930 or 10 and is just now waking up at 9.....I have a feeling I may be in for another long day....I will update more later....
.love to all.....Amanda, Rylan, And Victoria

New Job.....

Well I applied for a new job today....at Geoffrey's....It's basically a Toys R Us....I am hoping that I get it...but am nervous at the same time because I will have to take 2 weeks off during busy season because we are COMING HOME FOR CHRISTMAS!!!!!!!!!!!!!!!!!!!!!! I am so stoked don't know the exact dates yet but am just excited that we are coming home!!!!! Can't wait....love to all!!!!

My first post.....

Well this is my first attempt at blogging.....but I figured since we are 1250 miles away from everyone in the family that this is a good way to keep you all updated. We are all adjusting very well to everything here in Mississippi.....Victoria has been to the specialist, and we are going to continue her feeds as they are, but do a bolus feed at night instead of having her hooked up at night......we are going to eventually start doing larger, shorter feeds during the day.....Rylan is doing good as well. He loves playing on the farm, and watching the cows!

We have gone and looked at some homes the past couple of weekends and I have found a couple that I like, but they needs some work.....not that that is a problem because I would rather it be what I want ne way!

Well that's it for now....Gotta finish the laundry and Victoria is crying....by for now....
Amanda